Clayton dances now! I have waited four years for my sweet baby to dance and now he does! I. Love. It. Oh it makes me so happy to see him shaking those sweet little hips.
In other news, the foundation website is ready for viewing! I will be adding to it in the coming weeks, but its operational for now. I will be adding a page for foundation sponsors as well. If you know anyone who might like to become a sponsor, send them my way!
www.thegcccf.com
March 15, 2013
March 11, 2013
Faith
"Walk by faith, not by sight. As you take steps of faith, depending on Me, I will show you how much I can do for you. If you live your life too safely, you will never know the thrill of seeing me work through you."
I am always telling George or my mom to just trust me, believe in me, have faith in me. I suppose now it is time for me to have faith in God in a way greater than what I have shown in the past. It has always been easier for me to look to science when I needed answers. After all, science is about problem solving. The idea of being disappointed by the outcome of Clayton's health and blaming God, was hard for me. I didn't want to hate God for failing me or taking my son from me. Then I heard something that did not make me fear the future less, but it did make the idea of the worst a little more bearable. Someone was talking about asking God, "why, why would you take my child from me?" It was to this that someone responded, " but He did not take him, he received him." It was a new way of thinking about the pain of losing a child...for me. It helped me.
Anyway, two things throughout this journey and even my life have had a profound effect on my faith. One is the above story, and the second is my sweet friend Elissa. Watching her unwavering faith even at the lowest moments of her child's treatment was amazing. She and her husband were told they could only buy Matthew a little more time and yet their faith was unbelievable! They fasted, they prayed, they hoped. And Matthew whose boney disease had been unresponsive to chemo saw MAJOR improvement! So much that they are now home again waiting for their next treatment with good reason to hope for NED. Elissa's faith is inspiring. I love her, I love Matthew and am so honored to have met them.
All of this brings me to my faith. When to hold on, when to hope, when to take chances and find the right time to leap. I have faith in myself, I have faith in my abilities, I know I am good at certain things, yet leaping is scary... But it's about having faith that things will work out if they are meant too. The same way I ask people to trust me, I have to let go and trust God more. I have to trust that hopefully He won't let me fall on my face; though it wouldn't be the first time. ;)
So here I am with my foot hanging off the edge, with faith that this is the right move and sense to know that it is a good idea; ready to dive in. The new project for the George Clayton Childhood Cancer Foundation:
So excited to start giving back and doing more to help save babies!
SO excited! We will start accepting donations April 1st. I'll be back with more information later. Still tying up the last minute business side of things!
Did I mention I was happy about this.....
Oh, and we are going to make t-shirts for the foundation if anyone is interested! I am still working on the final design.
I am always telling George or my mom to just trust me, believe in me, have faith in me. I suppose now it is time for me to have faith in God in a way greater than what I have shown in the past. It has always been easier for me to look to science when I needed answers. After all, science is about problem solving. The idea of being disappointed by the outcome of Clayton's health and blaming God, was hard for me. I didn't want to hate God for failing me or taking my son from me. Then I heard something that did not make me fear the future less, but it did make the idea of the worst a little more bearable. Someone was talking about asking God, "why, why would you take my child from me?" It was to this that someone responded, " but He did not take him, he received him." It was a new way of thinking about the pain of losing a child...for me. It helped me.
Anyway, two things throughout this journey and even my life have had a profound effect on my faith. One is the above story, and the second is my sweet friend Elissa. Watching her unwavering faith even at the lowest moments of her child's treatment was amazing. She and her husband were told they could only buy Matthew a little more time and yet their faith was unbelievable! They fasted, they prayed, they hoped. And Matthew whose boney disease had been unresponsive to chemo saw MAJOR improvement! So much that they are now home again waiting for their next treatment with good reason to hope for NED. Elissa's faith is inspiring. I love her, I love Matthew and am so honored to have met them.
All of this brings me to my faith. When to hold on, when to hope, when to take chances and find the right time to leap. I have faith in myself, I have faith in my abilities, I know I am good at certain things, yet leaping is scary... But it's about having faith that things will work out if they are meant too. The same way I ask people to trust me, I have to let go and trust God more. I have to trust that hopefully He won't let me fall on my face; though it wouldn't be the first time. ;)
So here I am with my foot hanging off the edge, with faith that this is the right move and sense to know that it is a good idea; ready to dive in. The new project for the George Clayton Childhood Cancer Foundation:
So excited to start giving back and doing more to help save babies!
SO excited! We will start accepting donations April 1st. I'll be back with more information later. Still tying up the last minute business side of things!
Did I mention I was happy about this.....
Oh, and we are going to make t-shirts for the foundation if anyone is interested! I am still working on the final design.
March 10, 2013
March 10, 2013
Lots of random tidbits today.
Did I ever mention Clayton lost his two front bottom teeth? Well he did; back before Christmas. I've been watching them come in because I've heard when permanent teeth come in so young sometimes there might be some space issues. This also means we need to get on him more about brushing his teeth...he's not a fan.
He has been a total rockstar about doing his "puffs" everyday. I never would have guessed how well he would adapt to that. Since we started them, we have not had any respiratory problems. Praying it stays that way!
We had to have his port accessed and draw blood for HAMA a couple of weeks ago. He continues to be HAMA positive. Which means no treatment. He hasn't had treatment since October! We'll see how everything fits in with his new back schedule.
For now it looks like we might just be going back at the end of April for scans. Those three month scans will continue for another two and half years if he stays NED.
I have dates for his back! We will place what is called a "halo" on June 11 and we have an unknown surgery scheduled for August 27. I'll still come back and detail this later.
Oh, and we are on his FINAL round of accutane. In a week and half, we will be done! No more mood swings and peeling hands. Dang, time flys.
I have neglected posting this time, because of two reasons, one I forget how much time has gone by, but mostly because I have been a busy little bee making big plans for the foundation! Hopefully I can spill those beans in a week or so!
Did I ever mention Clayton lost his two front bottom teeth? Well he did; back before Christmas. I've been watching them come in because I've heard when permanent teeth come in so young sometimes there might be some space issues. This also means we need to get on him more about brushing his teeth...he's not a fan.
He has been a total rockstar about doing his "puffs" everyday. I never would have guessed how well he would adapt to that. Since we started them, we have not had any respiratory problems. Praying it stays that way!
We had to have his port accessed and draw blood for HAMA a couple of weeks ago. He continues to be HAMA positive. Which means no treatment. He hasn't had treatment since October! We'll see how everything fits in with his new back schedule.
For now it looks like we might just be going back at the end of April for scans. Those three month scans will continue for another two and half years if he stays NED.
I have dates for his back! We will place what is called a "halo" on June 11 and we have an unknown surgery scheduled for August 27. I'll still come back and detail this later.
Oh, and we are on his FINAL round of accutane. In a week and half, we will be done! No more mood swings and peeling hands. Dang, time flys.
I have neglected posting this time, because of two reasons, one I forget how much time has gone by, but mostly because I have been a busy little bee making big plans for the foundation! Hopefully I can spill those beans in a week or so!
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