May 3, 2013

I love this place. I love how the staff is so good with the kids and I love how brilliant the doctors are. I love them so much that even when there are screw ups I can put it in perspective because their overall care is so wonderful. For example his morning, there was a mix up with the time of our MIBG and so they had us here two hours earlier than we needed to be here; not fun, but they are too wonderful for me to get mad about that. I understand how much they have to juggle and I clearly see how well they work with what they have. I love that when they see a parent struggling with a fussy kid they pitch in offering toys and visits to the fish tank or just conversation for the kiddo in question. I love that when they see you out and about in the city they smile, say hello and ask how your doing. I love that they aren't afraid to put on a silly pair of glasses, or a silly hat or anything they can to get a kid to cheer up. If I had a genie to grant me one wish, it would be for families to have a hospital like this back home. If your kid is sick, the parents and the kids deserve a place as wonderful as this.
On a related note, I also love getting to meet other cancer families. Pediatric cancer is not like adult cancer. It is completely different. Here I get to meet other mothers like me and learn about their experiences and their children's experiences. Today I think I met the fellow-cancer-mom equivalent of my soul mate. Her son is older and has been doing this for 5 years. Sometimes you just really hit it off with somebody... you know? I love the fact that she can tell me stuff like she is glad Dr. Modak was doing the bone marrows, because her son has the least discomfort after Dr. Modak does them. I would never know things like this if it were not for these other moms that have older kids or at least have verbal kids.
Anyway, now that I'm done with my love-fest. Clayton is recovering from bone marrows and sedation now. Maybe this afternoon we will have some results from all of our scans. Wish us luck!