Medical Monday: Step in The Right Direction

Finally, we have heard something more from the doctor about what we are going to do about the urology dilemma.  To recap...We have a urologist at our local Nemours, that follows Clayton, but does not have the facilities to do any major medical with Clayton which is why we have been getting to know one of the urologists from Nemours Orlando, Dr. Swana.  Our local urologist has been able to handle things thus far, but on Clayton's kidney procedure in March ran into a problem and felt it was necessary to have the assist of Orlando Nemours' Dr. Swana (whom we've previously met and really like).  We were waiting to hear when they could coordinate to do the procedure when we learned Dr. Swana was leaving Nemours Orlando.  We started to get slightly concerned over our options and didn't seem to be able to get any answers...Until the end of last week.

What we now know, is that Dr. Swana is leaving Nemours Orlando, but is only moving to one of the other Orlando hospitals.

The bad news:

• It will be outside the Nemours system which makes things slightly more complicated.  

The good news:

• Dr. Swana's new facility is one that has EVERYTHING necessary for Clayton's very complicated urology needs.  Because when the day comes that he needs a transplant, Nemours Orlando cannot do it in house and would have had to send him to this other facility for the procedure anyhow.  So we are kind of just cutting out the middle man now and keeping the good doctor.
• It means we get to keep things in Orlando, which we found because of Dr. Swana, but we like because it is a reasonable (drivable) distance from home.
• Because Dr. Swana is staying within a reasonable distance, we can stay on with him and not have to worry about finding another major medical urologist.

So for now the doctors are trying to work out the politics of working together on Clayton's case while being at two different hospitals.  The great thing is that our local urologist is not concerned with what is easy for Nemours and is concerned instead with what is best for Clayton.  He feels Dr. Swana is best for Clayton and Dr. Swana is still eager to care for Clayton, so the two doctors are trying to sort things out.  Either Dr. Swana will come to Pensacola and we will attempt the procedure there with Dr. Swana and our local urologist; or if Nemours paper pushers make a stink of that since Dr. Swana just left them, then our local urologist said he would just send us to Dr. Swana's new facility in Orlando and there Dr. Swana and his fellow urologist (who also left Nemours) can attempt the procedure.  Which isn't a bad thing because our local urologist has been concerned about something going wrong with Clayton's procedure and him not being in a facility equipped to handle the repercussions of that complication.

So now we again wait...but at least this time we have a better idea of what to expect.