March 27, 2012

March 26, 2012

Did we get to start chemo? Tricky question. Yes, but almost no. We have had quite the delay in chemo over the past few weeks and were very anxious about today.
So we got here (to the Hope) did our labs and got our results, all by noon. Then we waited to see the doctor. Saw the doctor. Got our room and moved upstairs all by 2 p.m. Then we waited...and waited (completely unassuming)...until finally at a quarter 'til five the room phone rings. It was the doctor from the Hope. He was calling to tell us that there had been a mishap. The story goes that a faulty fax is responsible for the pharmacy not getting Clayton's chemo orders on time. Yes, my son who has already had a chemo delay due to low counts was going to have to have another day's delay while having wasted a day away in the hospital because of a faulty fax?
Call me a b!&$@, but I feel like if you have a job to do, you should do it. If that job is as important as making or faxing chemo orders, then verify that the pharmacy got the orders. You don't rely on a machine as fickle as a fax for something like chemo orders-especially chemo orders for kids. USE YOUR HEAD PEOPLE!
It truly is amazing the mistakes that can be made. Simple things.

On to the good...
We got to start chemo around 8:30 tonight after my favorite doctor came back in to oversee Clayton's chemo being made (Dr. Imran rocks!). Clayton did fine with his chemo. This combination is the crash-cart, potential hearing loss and possible kidney damaging chemo. The difference is that because we have had such a delay in chemo due to low counts, all of Clayton's chemo will be reduced by 50%. Maybe that will mean less nausea for him this go around?
He is doing good so far. Once again, we didn't need the crash cart. As for urinating to flush the second med from his system...he is doing OK. But fear not, they have drugs to aid him with this process. It's late, so more in the morning...

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