March 19, 2015

Port of Ronald

We made it through yesterday and last night with no complications.  Yesterday morning Clayton had his bone marrows done and his port removed.  And because of his reactions in September and last week, we stayed at the Ronald in Pensacola for the night so that if something came up post-op, we would be near the hospital.  Thankfully, all was well.


Clayton's cancer scans mostly looked good.  Something showed up on one of his lungs.  They aren't sure what it is, but since it did not show up on the MIBG, they don't think it is neuroblastoma.  They think it is just related to the degree to which his lungs are contorted from his scoliosis.  To be sure we will do a CT again in April.  We are going to attempt it without sedation though.  Fingers crossed that works!
As for his port, it had been in for two years, so it had to go.  He is such a hard stick (think IV) though that he may need another one in the future though.  We'll see.
I want to take a minute though to encourage folks to support Ronald McDonald House charities.  No matter where we go for Clayton's treatment, there they are.  They provide families with a safe, comforting and affordable place to stay near the hospital.  There are so many wonderful things about this charity and what they do for families.  I will say though that every house is slightly different.  Some do their thing better than others.  Our favorites so far are RMH New York City and RMH Northwest Florida (Pensacola).  They are exceptional!  So much fun for the kids, always a meal for families and just plain ole awesome!
They had a goodie bag for Clayton when we got there...sweet folks filled it with a few of his favorite things!


No comments:

Post a Comment