January 13, 2012

It is definitely Friday the 13th.  We have had a VERY long and stressful day so I'll update everyone real quick and explain more tomorrow.  Clayton had his bone marrow aspiration today and his catheter used for harvesting cells was put in.  However, this evening he spiked a fever and so we will not be able to harvest tomorrow.  They did blood cultures and so now we have to wait and see if anything grows in the next 24 hours.  Depending on what the cultures show we are now hoping to do the harvest on Sunday.  The soonest we will know about Sunday is 7 or 8 Saturday evening.

One of the other complications of the day, involved us spending the last 6 hours battling Clayton's blood pressure.  For some reason his blood pressure decided to dive late this afternoon around 4.  The issue was combated immediately with fluids and later in the evening with a blood transfusion as well.  We do not know the cause for sure;  It could be from his hemoglobin dropping, from a lack of fluid over a few hours following a sedation or from him receiving his blood pressure medicine when his blood pressure was already low from having been sedated.  Regardless, we have a few bones to pick with some people tomorrow regarding how some things were handled with a number of issues today involving both this hospital and USACW.

More tomorrow...

To every nurse and doctor out there:  I think MOST of you need to remember how you would feel if your child were the sick child.  The way y'all sometimes treat all of us parents would outrage you if roles were reversed.  Consider this, not one parent with a sick child chooses to be in the hospital, we're here because we have no choice.  As medical professionals y'all chose to be here.