August 7, 2012

3f8 Day 2

The residual pain continued through the morning, so we kept getting him meds to keep him comfy. He drank a couple of bottles of juice, but that's all he has had. He has mostly been sleeping other than the times he stirs to let us know he's getting uncomfortable.
Luckily, the social worker let us know yesterday afternoon that she was able to get us a room at the Ronald, so George stayed the night there and I hung with Clayton at the hospital. Clayton's restlessness didn't leave much time for sleep, but I am hoping tonight will be better.
He totally rocked his second round of 3f8. Once again, he started out asleep and this time he didn't wake up in pain until about 20 minutes in. Luckily it only lasted about 10 minutes and then he drifted back off and we were left to the sound of his little grunts in his sleep. They really try to set the tone for these kids. It isn't just some sterile environment set up for torture. They make the kids cozy and then they play soothing music and there is a dance therapist who tilts her rain stick back and forth to calm things down and she even massages his feet while he is going though the infusion. I have no idea why she is called a dance therapist, because there is no dancing involved, but I do love that rainstick. I have to get that on a sound track! They even have a massage therapist that comes in and shows the parents the best way to massage the child's feet. So they try very hard to make this as peaceful as can be expected on the kids.

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