April 30, 2012

Life at Memorial Sloan Kettering...different. Lets start with this the view is not as good but the food is much much better. They treat the parents to three meals a day...each. Me...food...George...free food...it just works. They give us a menu and you call down and order your food like room service. Don't worry they take care of Clayton too. He gets his own special menu. They give him anything he wants. Let's face it, he's a rockstar. Always has been ever since they jetted him off to Children's of Alabama when he was a few days old. They roll out the red carpet for their sick kids. Except for wipes. They don't supply wipes or size 6 diapers here at MSKCC...odd.
We have a private room thank goodness, because Clayton has had a hard time sleeping with all of the alarms from the other patients in our PICU room. Hopefully that means good sleep for the whole family tonight.
We'll probably only be in this room for a night or two. Our current unit is the POU (Pediatric Observation Unit). They pronounce it "poo". Ironically, that is exactly what we need Clayton to do. His bowels have been "sleeping" since surgery and we need them to wake up because his belly is very distended from being backed up.
Everything is looking good though. His creatine levels (kidney function) are perfect, he is off all respiratory support, and he is eating and drinking. Yay!
We did find out some new stuff today, but I am exhausted and can feel the black circles growing, so it has to wait until tomorrow. Seriously, it was hard keeping my eyes open for this. First thing though tomorrow...promise.