April 21, 2012

April 21, 2012...Recovery cont...

So things didn't go as we hoped and Clayton had to be intubated once again. There is a delicate balance between managing pain and having Clayton come off respiratory support. Now, from what I witnessed today, there was a small window when Clayton was off the ventilator that they could have medicated him safely while maintaining his respiratory progress. However that didn't happen and now we're back at square one.
As for his kidney, it is doing great. His creatine level has been slowly making it's way back to normal throughout the day as his urine output has increased.
So let's see... Safely remove tumor- check, sufficient urination and kidney function- check, getting off respiratory support? We could use some help...a few more prayers for healthy breathing?

Truth be told I am tired and grouchy and the PICU is the type of place to bring you down. We had just 5 hours of surgery, but we are already past 24 hours of recovery ups and downs and not sure when the end will be.
So far we have been trading off time between here and Ronald McDonald House. One of us is always with Clayton.
More later...

3 comments:

  1. Relieved to hear surgery was successful. Hoping the vent is gone soon. Praying and thinking of you all. Sharon

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  2. You got it, Sista! Prayers coming right up! That lil thang is rockin it! Whooohooo!

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  3. I'm SOOO happy that they were able to remove it!!! I'm surely praying for y'all every day!

    Anna Ready

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