June 1, 2012

June 1, 2012

Ok. Real quick update. Crazy day!
I am sick as a dog which is making things more hectic than normal. So that stinks. Especially because I am wearing a mask to avoid spreading germs and so Clayton is scared of me in the mask. He thinks I am going to do something to him because the nurses and doctors wear masks when they do stuff. :(
On the up side, it had been confirmed that Clayton's MIBG which highlights neuroblastoma cells in the body looked clean...GREAT NEWS!!! And the MRI of the head showed that there has not been any metastasizing in his head...more good news. Still waiting on the bone marrow next week though before they officially label him as NED.
Now for the bad news. The renal scan did confirm that his kidney is not getting off enough of the fluid so right now at 6:15 pm eastern time, we are waiting on them to take Clayton and do an "emergency" procedure to put a drain in his kidney. They want to do this now while his creatinine and BUN still look good. They don't want anything to get worse before they do this and they know that long term and even short term, this could be a SIGNIFICANT problem. He only has the one functioning kidney and this is the sort of thing that will damage its function over time. The doctors have a suspicion as to the cause of this, but for now I will wait and elaborate on that at another time.
I'll let everyone know how it goes...

Here they are now....




And back into his "man cave" for the ride to the procedure. (He always covers himself up with blankets and pillows, so the nurses starting calling it his "man cave")

No comments:

Post a Comment