June 5, 2012

NED!!!

That's right, we heard the words. No Evidence of Disease! It's official. What a day. We got the regular catheter out, found out we'll probably get to be outpatient as of tomorrow and got told Clayton was NED. Woot, Woot!
We still have a long way to go with our treatment, but this was a big step. Everyone knows what's next. And I'll come back tomorrow and update everyone on the game plan for that...

As for Clayton, he seems to be feeling OK. Definitely a little feisty today. His platelets and hemoglobin are all holding strong...Great news. His bladder his still bleeding a little, but the doctors expect that may continue for a bit. They are fine with that as long as there are no clots and his hemoglobin is not affected. The urine cultures they collected out of his nephrostomy tube the other day are all still negative. We will do an ultrasound next week to check on the status of the kidney and the hydronephrosis. We will also be meeting with the radiation team about the plan for that. And last on the agenda will be waiting on Dr. La Quaglia to return from his trip so we can discuss putting a stint in Clayton's ureter. This is not a big deal, he had one when he was a baby as well. A stint is a means of internalizing the nephrostomy tube by keeping his ureter open for adequate urine flow from his kidney to his bladder. That's all for now!

1 comment:

  1. I knew y'all could do it!! A great team: mom dad and clayton. My prayers will continue.

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