June 3, 2012

There wasn't much to report yesterday. Things were quiet which was good. The biggest problem we had was him being backed up. That has now resolved itself though. Today Clayton is in the best mood he's been in since we got up here. His hemoglobin is also holding strong at 10. something despite small amounts of blood coming from his continuous irrigation tube. Dr. La Quaglia's fellow, Emily (who we love, she is fantastic), said that we can expect to continue to have some light bleeding, but nothing like before. That could continue for a couple of months. The important thing is that it is not significant bleeding like before and it is not affecting his hemoglobin. Also, his nephrostomy tube will be draining the majority of his urine, so that will also allow his bladder more time to heal. There is a very small amount of blood that can be seen coming from his nephrostomy tube, but surgery is aware of it and they are all keeping an eye on it. Nothing bad to report, but nothing really new either. I am hopeful that we might can lose the catheter and clamp off the super pubic catheter by Tuesday and if all else looks good, maybe we can be out patient at RMH for a few days before starting 3f8.