June 1, 2012

Update- Kidney Situation...

It was a quick procedure. An hour and fifteen minutes from the time I left him and he was back in the room. They had to put him under with propofol and since he had eaten within two hours of sedating him they intubated him for the procedure to help protect against aspiration. He is now back in the POU and drinking again and has a new drain tube draining retained fluid from his kidney.
**Updated**
So the situation is both urgent and scary and not at the same time. I'll explain. The renal scan revealed that his kidney is retaining too much fluid causing the hydronephrosis. In other words there is fluid sitting on his kidney. Fluid that otherwise should be passing through his ureter into his bladder. Right now it is not affecting his kidney function, but with that amount of hydronephrosis, it could begin to affect its function at any time. We do not want that! It is vital that we protect this kidney! VERY IMPORTANT. The doctors here get that and that is why in just a little over twenty four hours after getting an idea about the situation they had a renal scan done, looked at the results and had a last minute -"emergency"- procedure completed. So the idea of the damage the fluid sitting on his could could do if not attended to efficiently is very very frightening. However, right now his kidney function has remained good so that is encouraging. Also the urgency used by these doctors in this situation alone is so comforting. Pray that this resolves the situation. This poor baby does not need any more tubes or anesthesia or anything else.

MSKCC is a pretty well oiled machine - with a personal approach. There have been so many things going on just since we've been up here, that normally would have had me stressing out like mad. Instead, I have just been reassured of the outstanding care being given to my child here. The doctors and nurses at this hospital have made a hard, stressful, nerve-racking situation a smooth process in which I have the utmost confidence in my child's care and do not feel the need to worry quite as much; because they are THAT good. Now of course I still stay on top of things, they just make it easier. I think even my mother has been impressed not only with the efficiency, but with the level of care this hospital provides their patients. It makes ALL the difference in the world. I'm going to sound like a commercial for a minute, but if you or someone you love is ever diagnosed with cancer, consult with this hospital. They are amazing! Not only are they that awesome, but I have learned that it is always worth while to go the extra mile (literally) to have the person you love treated at a hospital that specializes.
Now that the infomercial is over...

So to sum it up, tonight's procedure was urgent and was an "emergency", but it was not the kind of "emergency" that meant Clayton was in critical condition in that moment. So while his life/quality of life was not threatened in the moment they rushed him to the procedure, they did so because it was the type of situation that could cause permanent damage to his only kidney. They acted quickly to avoid a potential disaster and I am so grateful for that. I'll add, that this problem was not caused by his surgery Tuesday or by his tumor resection.
I really hope all these things will get my baby back to normal so he can be the awesome little boy he is!

1 comment:

  1. I love you!!!! You are an awesome mom!!!! Get well and stay strong! Many prayers your way!!!!!!!!!!

    ReplyDelete