October 17, 2012

October 17, 2012...UPDATED

Still waiting to find out the game plan, but I did find out that he was HAMA positive (as expected). This means we will not even be testing him again until the first week of November to see if he is HAMA positive or negative; so the soonest we would have to go back for treatment would be the second week of November...
Hopefully we'll know more soon...

So we have a game plan. I got to talk with the wonderful Dr. Michael La Quaglia and we figured things out. For starters, he said that the stint had not moved that much and he did not feel that there was a need to do anything with it. Second, he said that the hydronephrosis did not look that bad. Whatever additional hydronephrosis exists, is a product of reflux from the bladder not an obstruction with the stint. He strongly feels that the 3f8 antibodies can affect the bladder muscles as well as the fact that narcotics can weaken the bladder muscles. The combination of those two things and the timing of the scan seems to be the reason for the chaos. However we have it under control now. So we should be checking out of the hospital today and heading back to the Ronald. They are going to monitor him through the afternoon and do another bladder scan to see what things are looking like in there. If they feel he has more urine then they would like, then they might send us back to the Ronald with a catheter and they would then remove it on Friday. So we'll get through today and hopefully the rest of the week will continue on as scheduled.
A little clarity on the bladder issue though is this: the bladder is like a balloon and the more it is stretched out the weaker it becomes, so we need his bladder to void appropriately, so it can shrink back down and strengthen. We will also put him on some medicine that will help to strengthen his bladder.
In the end, we trust Dr. La Quaglia completely. We trust that if there was a need for urgency he would act ASAP. We have seen him in action and know this to be true. It is so amazing to have someone we can trust that way...wonderful wonderful man.

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