May 19, 2012

May 19, 2012...Moving on...

I am so lucky to have discovered a network full of moms who know what it is like to have battles with hospitals. Who know what it is like to fight for your child even when some people act like your crazy. When things happen now, these moms are phone calls and e-mails away. They have been there for me the past couple of days when I wasn't sure what was going on with Clayton and with this doctor and how to proceed with things. They are there to listen and give advice from their similar experiences. I am also so lucky to have found the wonderful doctors at MSKCC. Once we get out of here, they will be our primary oncologists. I don't care if the day comes where I have to move there. They are world class. There is a precious woman here in Mobile, Ms. Bessie, who seems like she belongs there. So warm, and loving, and comforting and eager to help make your life easier if at all possible. I cannot wait to get back up there.
All of the mess aside, Clayton's counts finally came up today. His white counts came up to 0.3 putting his ANC at 154. Progress...it is nice to have. Dr. Beall talked with the new attending doctor that came on and together they are making steps to help solve the clot situation. The attending that is on now is the one that diagnosed us. We have always had great respect for him and have never questioned him. I do want to add that we also like the other oncologist here. He is a nice man with whom I feel like we have only had issues because of them being so busy when he was on and because often times we would have him after we have the doctor we have a history of issues with. So he was more or less "cleaning up" our frustrations from her service. When the doctor came in today, he did make it clear in his own words that they (the three oncologists here) function as a team. And unfortunately the doctor we can't stand is the leader of the team. Sucks for us.
Please pray the blood clots clear up and he has less and less blood in his urine each day and that when his ANC reaches 500 we can go home. Wish this could all happen Monday...fingers crossed!

1 comment:

  1. Hope our prayers are answered soon so you can take Clayton home. Keep fighting for your son because I believe God gave Clayton you as a mother because he knew you would stand up for him in his time of need. You have my prayers daily.

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