He is also eating and drinking more and more everyday. We've got to get some meat on those bones!! His diapers overall, are looking better these days too (less bloody). For now, we are stuck waiting on his pesky counts to come up and until they start to budge we will continue to be stuck here in the hospital. Uuughh!
Meanwhile I am struggling with the doctor here as always. The doctor at MSKCC wanted us to do two or three tests here in preparation for going there and doing a few tests later. All I need the doctor here at USACW to do is read an email to see which tests the doctor from MSKCC wanted them to do so we can get it knocked out while we're already stuck in here. The tests were first mentioned to one doctor last week...no progress...but he was most likely waiting to see if we would end up in the hospital...perfectly fine with that, that was kind of the plan (the MSKCC doctor figured we'd end up in the hospital and that would be a convenient time to do the scans). Then we mentioned the tests to the doctor here over the weekend to see if we could schedule them...she said that shouldn't be a problem and she would look at the email to see which ones he wanted done here...nothing. I mentioned it again Monday and without even knowing which tests it was, the nurse practitioner shot me down saying it would be too soon...funny thing is the MSKCC doctor ordering the tests didn't think it would be too soon? I mentioned it again today, this time to the doctor again and was shut down for the same reasons as on Monday...here is the thing though, they dont act as though they have never looked to see which tests it was! If they did maybe they would see that timing isn't important or maybe they would just understand that the doctor who ordered the tests knew they would be done now and that was fine with him. But what does he know, he is only one of a very few neuroblastoma specialists in the world.
Seriously what is the problem with this place? Do people not take pride in their jobs? I know people get burnt out, but if you choose to be in the medical field, you have a responsibility to keep your bull @&$? in check. This is people's lives and there is no excuse for half-a$$ing it. Mistakes are one thing, everybody makes them, but half- a$$ing it is not OK. I've said it before and I'll say it again, if your in the medical field, you choose to be here, the rest of us don't. Even this morning on the way to work, I called the hospital to get Clayton's morning labs and when I asked if they had come back I was told no, the lab hadn't called yet...again seriously...I had to ask her to look in the computer and wouldn't you know it, there they were! But wait... Then she tried to tell me that she wasn't allowed to give them to me...WHAT?! The nurses always give me the labs, so what this girl's deal was I'm not sure, but get it together people! Especially at a children's hospital, these are people's babies! If you can't do your job worth a dang here then your just asking to have a pissed off momma blow up in your face. I wish I was in a position to revolutionize the medical world from a patient's standpoint...maybe one day.
One more thing before I completely get off my soapbox...
I do want to add though for anyone who might ever need a doctor over here, a general pediatrician attending both here in the hospital and in their clinic is Dr. Ladonna Crews and she is phenomenal. Not only is she a mom, but she gets "it". Whatever "it" is that makes this hospital world run the way it should.
Meanwhile, I am taking my frustration out on cupcakes...and cookies...and cake and anything sweet that starts with a letter A to Z. Yep, I'm 'fessing up. It has come from months of eating out while living in hospitals. And New York put it overboard with all the bakeries. Any "togetherness" I appear to have is probably only made possible by the last cupcake. You think I'm joking...I'm not. George (and my waist) despise cupcakes all because of my "problem". But it all ends today...well tonight...when I wake I tomorrow it's over! Just one last binger...
The next fundraiser will have to be a marathon. Definitely a marathon. I need to get moving!
Even your most disturbing posts never fail to make me laugh!
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